Events/News
Family in the News
August 13, 2019
Meet Super E, Just Being Me
May 19, 2019
Children’s Healthcare of Atlanta to be part of network helping to fight rare disease
March 29, 2019
US Army and local boxers fighting for Grayson’s Ladder and a cure for Alexander Disease
January 15, 2019
2019 Alexander Disease Update
March 17, 2018
The little boy has a disease with no cure. His family is determined to fight back.
September 26, 2018
2018 Heart of Gold recipient Lauren (LoLo) Loredo
September 24, 2018
Leukodystrophy Patient Featured on Seeking Solutions with Suzanne
October 7, 2017
Hundreds attend Love Hope Cure Gala to benefit Elise’s Corner
August 12, 2016
Jackson family faces deadly rare diagnosis; 5k planned for therapy, research, wheelchair
June 13, 2015
Falls parents seek hope through research for daughter, 3, with fatal disease
March 24, 2015
Mom fights to bring attention to son’s rare disorder with no cure
Axd Research in the News
September 16, 2019
Alexander Disease Research Bibliography
January 15, 2019
2019 Alexander Disease Update
October 31, 2018
Advances in Ionis’ Novel Antisense Technology to be Presented at 2018 Society for Neuroscience Meeting
August 31, 2018
Stem Cell Model Uncovers Mechanisms Underlying Disease Pathology of Alexander Disease
August 31, 2018
Alexander Disease Family Conference 2018
February 24, 2018
Antisense as a Strategy for Treatment in Alexander Disease
January 25, 2018
At the Bench-Alexander Disease Antisense Therapy Yields Positive Results in Mice with Rare Leukodystrophy
January 14, 2018
Antisense suppression of glial fibrillary acidic protein as a treatment for Alexander disease
November 6, 2019
A Novel Mutation of GFAP Causing Adult-Onset Alexander Disease
Sept-Oct 2019
Tadpole Brain Atrophy in Adult-Onset Alexander Disease
November 4, 2019
Site-specific phosphorylation and caspase cleavage of GFAP are new markers of Alexander Disease severity
February 11, 2020
Ionis candidate treatment for AxD granted “orphan drug” status in Europe
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