Family in the News
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August 13, 2019
Meet Super E, Just Being Me
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May 19, 2019
Children’s Healthcare of Atlanta to be part of network helping to fight rare disease
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March 29, 2019
US Army and local boxers fighting for Grayson’s Ladder and a cure for Alexander Disease
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January 15, 2019
2019 Alexander Disease Update
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March 17, 2018
The little boy has a disease with no cure. His family is determined to fight back.
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September 26, 2018
2018 Heart of Gold recipient Lauren (LoLo) Loredo
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September 24, 2018
Leukodystrophy Patient Featured on Seeking Solutions with Suzanne
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October 7, 2017
Hundreds attend Love Hope Cure Gala to benefit Elise’s Corner
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August 12, 2016
Jackson family faces deadly rare diagnosis; 5k planned for therapy, research, wheelchair
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June 13, 2015
Falls parents seek hope through research for daughter, 3, with fatal disease
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March 24, 2015
Mom fights to bring attention to son’s rare disorder with no cure
Axd Research in the News
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September 16, 2019
Alexander Disease Research Bibliography
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January 15, 2019
2019 Alexander Disease Update
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October 31, 2018
Advances in Ionis’ Novel Antisense Technology to be Presented at 2018 Society for Neuroscience Meeting
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August 31, 2018
Stem Cell Model Uncovers Mechanisms Underlying Disease Pathology of Alexander Disease
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August 31, 2018
Alexander Disease Family Conference 2018
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February 24, 2018
Antisense as a Strategy for Treatment in Alexander Disease
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January 25, 2018
At the Bench-Alexander Disease Antisense Therapy Yields Positive Results in Mice with Rare Leukodystrophy
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January 14, 2018
Antisense suppression of glial fibrillary acidic protein as a treatment for Alexander disease
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November 6, 2019
A Novel Mutation of GFAP Causing Adult-Onset Alexander Disease
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Sept-Oct 2019
Tadpole Brain Atrophy in Adult-Onset Alexander Disease
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November 4, 2019
Site-specific phosphorylation and caspase cleavage of GFAP are new markers of Alexander Disease severity
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February 11, 2020
Ionis candidate treatment for AxD granted “orphan drug” status in Europe
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